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Possible conflicts of interest amongst CALDA Board Of Directors

Reply from: Sewer Rat
Date: 19 May 2008, 03:10
Possible conflicts of interest amongst CALDA Board Of Directors

Members of the Board Of Directors of the CALDA include: someone from
IGeneX, people involved with the ILADS, people who are so-called LLMDs.

How can the CALDA stay objective and impartial this way, with regards to
Lyme disease information, test laboratories, doctors, guidelines, etc?


Source: http :// www .lymedisease.org/calda/directors.html

Board Of Directors

Barbara Barsocchini, MBA, Senior Vice President
Malibu, California

Ms. Barsocchini was instrumental in bringing CALDA to the Los Angeles
area and for arranging the 1997 CALDA conference Tick-borne Disease in
the Western United States in Los Angeles. She also co-organized the 1998
Chico and 2002 San Francisco CALDA conferences. In addition, she
organized the 2004 California Senate Hearing on Lyme Disease at the
State Capitol. She is CALDA’s representative on the Lyme Disease
Advisory Committee that advises the California Dept. of Public Health.
She serves as a trustee of the Los Angeles County West Vector Control
District and is the official Lyme disease spokesperson for the city of
Malibu. Her focus is on establishing and implementing CALDA's Physician
Education Program. She continually gives support and information to
people who contact her and is a tireless patient advocate.

Nick Harris, PhD, ABMLI
Palo Alto, California

Dr. Nick Harris, a board certified immunologist, is currently the
President and CEO of IGeneX Laboratory, which he founded in 1991. His
undergraduate training was at the Univ. of Wisconsin and graduate
training at the Medical Center, Univ. of Illinois, in Chicago. Following
a postdoctoral fellowship in transplantation immunology at the Univ. of
Minnesota, he became an Associate Professor of Surgery and Biochemistry
at the Univ. of Texas. He left academia to head the immunology
department at Bioscience Laboratories in Los Angeles, then joined 3M
Diagnostic Systems as Technical Director. Dr. Harris has three patents,
over 100 formal publications in immunology and Lyme disease, and three
book chapters. He helped found ILADS in 1999 and is an active member of
numerous societies. He is on the Board of Directors of CALDA and of the
International Lyme and Associated Disease Society.

Steven Harris, MD
Malibu & Redwood City, California

Steven Harris, MD, is a board-certified family practitioner in private
practice with offices in Malibu and Redwood City, California. He is a
member of the International Lyme and Associated Diseases Society (ILADS)
and has extensive experience in Lyme Disease, Urgent Care and
International Medicine. He is currently the clinical consultant for
Igenex, Inc.

Lorraine Johnson, JD, MBA, Executive Director
Los Angeles, California

Lorraine Johnson earned her JD at Loyola Law School and her MBA at USC.
She has served as general counsel for public mid-sized entertainment
companies, including Telepictures, Lorimar, and Imagine Films. She also
served as Chief Operating Officer at Solomon International
Entertainment, a small film production and distribution programming
company. She currently serves as the executive director of the
California Lyme Disease Assn., as a member of the Board of Directors of
International and Lyme Associated Diseases Society (ILADS), and as a
member of the advisory board of the national Lyme Disease Association.
She has published widely on the topic of health care
medico-legal-ethics, addressed state legislators, participated in the
Canadian government consensus panel, and met with the Centers for
Disease Control and Prevention.

Phyllis Mervine, EdM, President
Ukiah, California

The founder of CALDA, Phyllis Mervine has served as president since
1990. She also started the Lyme Times in 1989 and serves as
editor-in-chief. She collaborates with researchers doing studies of
ticks, animal reservoirs, and human infection in northern California.
She is a volunteer Lyme disease consultant for Mendocino County,
California, and a former member of the NIH Advisory Panel for Studies on
Chronic Lyme Disease and the Ad Hoc Lyme Disease Committee in
California. Her letters responding to published articles have been
published in peer-reviewed journals. Her posters have been displayed at
international Lyme conferences. She set up the CALDA network of state
information and support groups across the United States. She is the
owner/moderator of a website for national Lyme community leaders and
advocates on the internet. Her special interests, besides ensuring the
longterm success of CALDA, are networking and community-building, making
accurate information accessible to patients, and educating, mentoring,
encouraging and supporting the next generation of Lyme disease advocates.

Stephanie Propp, Secretary
Auburn, California

Ms. Propp has served as treasurer of CALDA for the past 5 years. She has
been instrumental in identifying and meeting the needs of Hispanic
patients by providing educational materials in Spanish. In 2004 she
organized a holiday home tour fundraiser for CALDA. She is the
co-founder of Sierra Foothill Lyme Support Group in Grass Valley and the
Sacramento Lyme Support Leader.

Raphael Stricker, M.D.
San Francisco, California

Dr. Stricker received his medical degree and training in Internal
Medicine at Columbia University in New York. He did subspecialty
training in Hematology/Oncology at the University of California San
Francisco, and supplemental training in Immunology and Immunotherapy at
California Pacific Medical Center in San Francisco. He is currently the
Medical Director of Union Square Medical Associates, a multispecialty
medical practice in San Francisco (Website: www .usmamed,com ).

Dr. Stricker is a member of the American Society of Hematology (ASH),
the Federation of Clinical Immunology Societies (FOCIS), the American
Federation for Medical Research (AFMR), the American Society for
Reproductive Immunology (ASRI), the American Society of Microbiology
(ASM), the American Academy of HIV Medicine (AAHIVM). He was president
of the International Lyme and Associated Diseases Society (ILADS). He
serves on the Lyme Disease Advisory Committee that advises the
California Dept. of Public Health. He is a recipient of the American
Medical Association Award for Physician Excellence, and he has authored
over 100 medical journal articles and abstracts. Areas of special
interest include immunologic infertility, immunodeficiency, coagulation
disorders and tick-borne diseases.

Officers
Marisa Battilana, JD, Director of Development
San Rafael, California

Marisa graduated from University of California Law School, Hastings, and
practiced law until 2004. She is firmly committed to the Lyme community
and is active in providing patient support, distributing the Lyme Times,
public and physician education, and fundraising.



Advisory
Marylynn Barkley, Ph.D., M.D.
Davis, California

Dr. Barkley is both a practicing physician and a researcher interested
in the relationship between Lyme disease symptoms and female hormonal
cycles. She is on the CALDA Scientific Review Committee and is a
frequent speaker at Lyme disease conferences. Several of her research
papers have appeared in poster sessions at international Lyme
conferences. She provides a valuable link between the patient and
research communities.

Robert S. Lane, Ph.D.
Berkeley, California

An internationally recognized entomologist, Dr. Lane has published
numerous articles on ticks and Lyme disease in peer-reviewed medical
journals. He is a top-rated NIH grantee. He conducts field studies in
northern California and teaches at UC Berkeley. He serves on the Lyme
Disease Advisory Committee that advises the California Dept. of Public
Health. He serves on the CALDA Scientific Review Committee and was
cochairman of the 1997 CALDA conference, Tick-borne Diseases in the
Western United States and chairman of the 1998 International Conference
on Lyme Borreliosis.

Walter Prehn, M.D.
Sonoma, California

Ginger Savely, NP
San Francisco, California

Chris Green, M.D.
Palo Alto, California

Reply from: the 3rd Man
Date: 19 May 2008, 16:31
Re: Possible conflicts of interest amongst CALDA Board Of Directors

On May 18, 8:10 pm, Sewer Rat <ratfromthese...@yahoo,com > wrote:

> Members of the Board Of Directors of the CALDA include: someone from
> IGeneX, people involved with the ILADS, people who are so-called LLMDs.
>
> How can the CALDA stay objective and impartial this way, with regards to
> Lyme disease information, test laboratories, doctors, guidelines, etc?


Yes, interesting, isn't it?

It certainly raises some "interesting" perception issues...like, is
CALDA a legitimate patient advocacy group, or a patient referral
"service", an arm of a larger economic enterprise?

Clearly, Igenex and ILADS have financial interests in the Lyme disease
debate.

To what extent does this charity, "CALDA", operate as a conduit,
funneling patient referrals to these entities, who clearly, then,
benefit financially? To what extent (knowingly or unknowingly) do they
herd the sheep into the pens?

My understanding, recollection, was that Ms. Johnson and CALDA were
the ones who more or less led the charge (if you can call it that) on
this antitrust charade.

Now, how could they sit there in Blumenthal's office, arguing that the
IDSA is a market competitor, while they have ILADS members and Nick
Harris sitting on their board? If the IDSA is a "market competitor",
then by definition, surely ILADS and Igenex are as well, one would
think.

It's sort of absurdly, surrealistically comical.

And...to reverse the question about whether the IDSA members profit
form their recommendations...

...do ILADS members stand to profit from their recommendations of
longterm IV antibiotics?

You would have to think so.

Maybe our friend Phyllis will pop her head in here when she has a
spare minute or two and perhaps answer some of these questions...

...(and I owe her a million-buhzillion "I told you so" s)...

...but I wouldn't hold my breath waiting, until I turn blue...

...(turning blue falls within the parameters of Brent's jurisdiction,
BTW).

Reply from: chronichell70@yahoo,com
Date: 20 May 2008, 01:26
Re: Possible conflicts of interest amongst CALDA Board Of Directors

On May 19, 7:31 am, the 3rd Man <derdrittemann2...@yahoo,com > wrote:
> On May 18, 8:10 pm, Sewer Rat <ratfromthese...@yahoo,com > wrote:
>
> > Members of the Board Of Directors of the CALDA include: someone from
> > IGeneX, people involved with the ILADS, people who are so-called LLMDs.
>
> > How can the CALDA stay objective and impartial this way, with regards to
> > Lyme disease information, test laboratories, doctors, guidelines, etc?
>
> Yes, interesting, isn't it?
>
> It certainly raises some "interesting" perception issues...like, is
> CALDA a legitimate patient advocacy group, or a patient referral
> "service", an arm of a larger economic enterprise?
>
> Clearly, Igenex and ILADS have financial interests in the Lyme disease
> debate.
>
> To what extent does this charity, "CALDA", operate as a conduit,
> funneling patient referrals to these entities, who clearly, then,
> benefit financially? To what extent (knowingly or unknowingly) do they
> herd the sheep into the pens?
>
> My understanding, recollection, was that Ms. Johnson and CALDA were
> the ones who more or less led the charge (if you can call it that) on
> this antitrust charade.
>
> Now, how could they sit there in Blumenthal's office, arguing that the
> IDSA is a market competitor, while they have ILADS members and Nick
> Harris sitting on their board? If the IDSA is a "market competitor",
> then by definition, surely ILADS and Igenex are as well, one would
> think.
>
> It's sort of absurdly, surrealistically comical.
>
> And...to reverse the question about whether the IDSA members profit
> form their recommendations...
>
> ...do ILADS members stand to profit from their recommendations of
> longterm IV antibiotics?
>
> You would have to think so.
>
> Maybe our friend Phyllis will pop her head in here when she has a
> spare minute or two and perhaps answer some of these questions...
>
> ...(and I owe her a million-buhzillion "I told you so" s)...
>
> ...but I wouldn't hold my breath waiting, until I turn blue...
>
> ...(turning blue falls within the parameters of Brent's jurisdiction,
> BTW).

What if we contact A.G. Blumenthal and ask him to investigate a
possible conflict on interests in the CALDA association? I think is
more of a clear cut case, maybe he could save some face that way.

Reply from: Sewer Rat
Date: 20 May 2008, 02:49
Re: Possible conflicts of interest amongst CALDA Board Of Directors

chronichell70@yahoo,com wrote:
> What if we contact A.G. Blumenthal and ask him to investigate a
> possible conflict on interests in the CALDA association? I think is
> more of a clear cut case, maybe he could save some face that way.

It is sort of "funny", isn't it? But I am also very serious about this.

We can see possible conflicts of interest also in other Lyme
organizations. And to me they often appear biased and not objective.

Reply from: chronichell70@yahoo,com
Date: 20 May 2008, 03:27
Re: Possible conflicts of interest amongst CALDA Board Of Directors

On May 19, 5:49 pm, Sewer Rat <ratfromthese...@yahoo,com > wrote:
> chronichel...@yahoo,com wrote:
> > What if we contact A.G. Blumenthal and ask him to investigate a
> > possible conflict on interests in the CALDA association? I think is
> > more of a clear cut case, maybe he could save some face that way.
>
> It is sort of "funny", isn't it? But I am also very serious about this.
>
> We can see possible conflicts of interest also in other Lyme
> organizations. And to me they often appear biased and not objective.

Yes, is important, who knows? maybe that will be an issue that is
being discussed or that will be discussed by Heath Care Officials. I'm
pretty sure that has been to some degree exposed (by the IDSA and
others). With the debacle of the investigation by Blumenthal, it's
probably going to attract more attention for health agencies to
investigate this association and specialized labs.

Reply from: the 3rd Man
Date: 20 May 2008, 03:49
Re: Possible conflicts of interest amongst CALDA Board Of Directors

On May 19, 7:49 pm, Sewer Rat <ratfromthese...@yahoo,com > wrote:


> It is sort of "funny", isn't it? But I am also very serious about this.
>
> We can see possible conflicts of interest also in other Lyme
> organizations. And to me they often appear biased and not objective.


Yes, there are legitimate issues involved, I think.

But I still feel that this...whatever this was...was the wrong way to
go after an issue like this.

The legal basis, to my mind, was of extremely doubtful
justification...but from a public policy perspective...just absolutely
braindead.


Reply from: chronichell70@yahoo,com
Date: 20 May 2008, 02:28
Re: Possible conflicts of interest amongst CALDA Board Of Directors

On May 19, 7:31 am, the 3rd Man <derdrittemann2...@yahoo,com > wrote:
> On May 18, 8:10 pm, Sewer Rat <ratfromthese...@yahoo,com > wrote:
>
> > Members of the Board Of Directors of the CALDA include: someone from
> > IGeneX, people involved with the ILADS, people who are so-called LLMDs.
>
> > How can the CALDA stay objective and impartial this way, with regards to
> > Lyme disease information, test laboratories, doctors, guidelines, etc?
>
> Yes, interesting, isn't it?
>
> It certainly raises some "interesting" perception issues...like, is
> CALDA a legitimate patient advocacy group, or a patient referral
> "service", an arm of a larger economic enterprise?
>
> Clearly, Igenex and ILADS have financial interests in the Lyme disease
> debate.
>
> To what extent does this charity, "CALDA", operate as a conduit,
> funneling patient referrals to these entities, who clearly, then,
> benefit financially? To what extent (knowingly or unknowingly) do they
> herd the sheep into the pens?
>
> My understanding, recollection, was that Ms. Johnson and CALDA were
> the ones who more or less led the charge (if you can call it that) on
> this antitrust charade.
>
> Now, how could they sit there in Blumenthal's office, arguing that the
> IDSA is a market competitor, while they have ILADS members and Nick
> Harris sitting on their board? If the IDSA is a "market competitor",
> then by definition, surely ILADS and Igenex are as well, one would
> think.
>
> It's sort of absurdly, surrealistically comical.
>
> And...to reverse the question about whether the IDSA members profit
> form their recommendations...
>
> ...do ILADS members stand to profit from their recommendations of
> longterm IV antibiotics?
>
> You would have to think so.
>
> Maybe our friend Phyllis will pop her head in here when she has a
> spare minute or two and perhaps answer some of these questions...
>
> ...(and I owe her a million-buhzillion "I told you so" s)...
>
> ...but I wouldn't hold my breath waiting, until I turn blue...

> ...(turning blue falls within the parameters of Brent's jurisdiction,
> BTW).

LOL,

What if we contact A.G. Blumenthal and ask him to investigate a
possible conflict of interests in the CALDA association? I think is
more of a clear cut case, maybe he could save some face that way.

Reply from: the 3rd Man
Date: 20 May 2008, 03:45
Re: Possible conflicts of interest amongst CALDA Board Of Directors

On May 19, 7:28 pm, chronichel...@yahoo,com wrote:
>
> LOL,
>
> What if we contact A.G. Blumenthal and ask him to investigate a
> possible conflict of interests in the CALDA association? I think is
> more of a clear cut case, maybe he could save some face that way.- Hide quoted text -

Excellent suggestion. Works for me.

He can make a career out of it...already got a headstart...

If he promises to also investigate certain criminally stupid Lyme
websites (one, in particular)and bring the perps to proper internet
justice...hell, I'll move to Connecticut and vote for him for whatever
office he is so stridently and shamelessly pandering in front of the
voters to get...whatever office he has his sights on...Lyme Sultan or
grand poobah, or whatever...




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